Congratulations on the recent or expected birth of your new baby!

As parents of children with Down syndrome, we understand that this can be a confusing time of mixed emotions and endless questions.  We would first like to say that we are here for you.  Please do not hesitate to reach out to us.  This section serves as reference for current information on Down syndrome.  However, the most helpful resource of all may be a fellow parent.

Enjoy this special time.  It can not be said enough…your baby with Down syndrome is a baby first.    Love, learn and if necessary, grieve.

Love:

Marvel at the wonder of your new baby’s hands,  kiss those adorable feet, sing to him or her and shop for baby clothes.

Learn:

Learn all that you can about Down syndrome and advocate for your child.  You will feel empowered as you become an expert and help your child reach his/her full potential.

Grieve:

Cry if you feel the need to mourn “the loss of a dream”.  This does not mean that you do not love your baby.  Some parents find they first grieve the loss of the child they thought they were expecting, as they learn to celebrate the beautiful child that they do have.

While this difficult diagnosis may initially bring you heartache and sadness, your baby will bring you unbelievable love and happiness.  You will ultimately find that your baby with Down syndrome is more like you than different and above all, you will find joy beyond belief!

Please call us (631-533-2864) or e-mail us at connect@dscli.org if you would like to speak to someone.  We would love to hear from you and look forward to meeting you and your beautiful new child.

For Guidance:

On Long Island your child with Down syndrome will qualify for services from your county’s Early Intervention Program.  Providers may include a social worker, special education teachers, physical therapist, occupational therapist, feeding and speech therapists, and a nutritionist.  All of these therapists can and will work with you and your baby at your home.  Contact your Department of Health for referral to a local service coordinator.

If you just received news of your pregnancy with a child with Down syndrome or if you just gave birth to a baby with Down syndrome, please visit www.jacksbasket.org to receive gifts, additional support, and resources.