View our Event Gallery

SUPPORT DSCLI 

 

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DSCLI’s Winter Break Party

Sunday, February 26, 2017

12-3

Knights of Columbus in East Northport

$25 per family Please RSVP Click here to see flyer

 

 

PAST EVENTS

DSCLI’s Mom’s Night Out

Tuesday, March 1st, 2016

7:30 PM

The Refuge in Farmingdale

Click here for flyer.

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DSCLI’s Valentine’s Day Party

Sunday, January 31st, 2016

3-6 PM

$25 per family (Immediate family only)

Dinner, Dessert, DJ with kids entertainment and games included.

Click here for flyer and additional details.

Please RSVP by January 25th.

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DSCLI’s Annual Family Fun Day

Sunday, June 28th, 2015 at Hoyt Farm in Commack

2-6 PM

$12 Parking fee for non-residents of the town of Smithtown

Bring a cooler with food and drink.  There will be a dessert table set up for each family to share a dessert.

Fun for the entire family with 2 playgrounds, animals, an open grassy field, a softball field, nature trails, a nature center, BBQ pits, and picnic tables under a covered pavilion.
Sprinkler Park will be open until 4:00.
Activities to be provided for children.

Please RSVP at connect@dscli.org

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Friar’s Golden Kids Carnival

Sunday, May 3, 2015, 1-4

Saint Anthony’s High School

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DSCLI Holiday Brunch

Sunday, January 11th, 2015, 12PM-3PM

LOCATION CHANGE: St. Anthony’s of Padua (lower Church), 20 Cheshire Place, East Northport, NY 11731

Click New Year Lunch Flyer 2015 with tear off for flyer and tear off to RSVP

Please mail in payment by January 3rd

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The 11th Annual Conference on Best Practices in the Education of Children with Down Syndrome Sponsored by The Down Syndrome Advocacy Foundation and The Center for Community Inclusion at LIU Post

December 5-6, 2014

Long Island University Post Campus, The Tilles Atrium, 720 Northern Blvd, Brookville, NY 11548

As always, this year’s 2 day conference addresses the needs of children/students with Down syndrome from infant and toddler through young adulthood. The theme of this year’s conference is meeting the medical needs of children with Down syndrome. For more detailed information, click here for the brochure, registration form and workshop descriptions.

If you have any questions, please call 516-299-3812 or e-mail conferenceonbestpractices@yahoo.com

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Behavior Management Workshop

Tuesday, October 28, 2014, 7:00 PM

Achieve Beyond, 538 Broadhollow Road, 2nd Floor, Melville, NY 11747

This workshop will outline some basic behavior management strategies to use in a classroom and home setting. It will review the reasons behaviors occur (functions of behavior) and strategies to identify those functions of behavior. Please RSVP at connect@dscli.org, DSCLI on Facebook, or call Virginia at 631-261-8332.

Click here for flyer

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ACDS’ Annual Gala

This year ACDS is so proud and excited to honor two great individuals and their inspirational work in the DS Community, Miss Jamie Brewer of F/X American Horror Story and Dr. Brian Skotko, Co-director of the Down

Syndrome Program At Massachusetts General Hospital

October 25, 2014,The Garden City Hotel

Please consider a sponsorship, journal ad or donation to help support this great event!

We are also in need of silent auction prizes. For more information, please contact Laurie Schaefer at lschaefer@acds.org

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The Twenty-Second Annual Legislative Breakfast

Friday, October 17, 2014

Long Island Hilton Hotel, 598 Broadhollow Road, Melville

This event provides an opportunity to inform our elected officials about the needs and accomplishments of our family members with a disability.

For more information, please visit www.lifssac.com

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Golf outing to benefit The Down Syndrome Advocacy Foundation

Thursday, October 16, 2014

Pine Ridge Golf Course, County Road 83, Coram, New York

Visit DSAF here

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Romp for Research

A fun family event to raise money and awareness for the Down Syndrome Research and Treatment Foundation

Sunday, October 12, 2014 – 12:30 PM-4:00 PM

Asphalt Green, NYC

Click here to register, make a donation, or learn more about the event

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Alexander’s Angels Long Island’s 8th Annual Buddy Walk

Saturday, October 11th, 2014 from 10:30 AM- 3 PM

Tanner Park, Copiague

Click here to register or to make a donation

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Developing Therapies to Improve Cognitive Abilities in Individuals with Down Syndrome and Autism

Guest Speaker Professor Craig Garner of Stanford University

Sponsored by The Matthew Foundation

Sunday, October 5, 2014, 2 PM

Manhasset Public Library, 30 Onderdonk Avenue, Manhasset, NY 11030

Please RSVP to info@thematthewfoundation.org

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Bicycle Camp for Individuals With Disabilities

Collaborated by iCan Bike (Formerly Lose The Training Wheels), DSAF, & The Center for Community Inclusion at LIU Post

August 11 – August 15th, 2014

Teaches individuals with disabilities to independently ride a conventional two-wheeler with a success rate of approximately 80%.

Click 2014 iCan Bike Flyer for additional qualifications and details

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Huntington SEPTA 1 Day Bike Clinic to lose the training wheels

Saturday, June 7th, 2014

Click BikeCampflyer for flyer

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DSCLI’s Family Fun Day

IMG_7316

Sunday, June 1st, 2014

Crab Meadow Beach, off Waterside Avenue, Northport

Activities to be provided for the children.

Bring the family, the beach toys, and the cooler with food and beverages for your family! Pizza is also available to purchase at the restaurant on the beach.

There will be a dessert table set up for each family to share their favorite dessert with the group.

Click here for the flyer

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DSCLI’s Mom’s Night Out at the Melting Pot

Tuesday, May 13, 2014, 7:30 PM

Please join us for a mom’s night out at the Melting Pot in Farmingdale for 3 varieties of chocolate fondue, soda, coffee, and hot tea. $16 per person includes the tax and gratuity.Chocolate-Melting-Pot

 

 

 

 

 

 

 

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ACDS 2014 Annual Golf Classic at Hempstead Golf & Country Club

Thursday, May 8, 2014

The outing, which will be shotgun format, will raise funds for ACDS, which provides lifetime resources for individuals with Down syndrome, autism and other developmental disabilities and their families.

The all-day event includes brunch, dinner and a special Awards Ceremony.

Go to www.acds.org for more details.

 

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Down Syndrome Connection of Long Island & Cold Spring Harbor Laboratory Presents Speaker Craig C. Garner, Ph.D., Co-Director of the Center for Research and Treatment of Down Syndrome at Stanford University

Dr. Garner

Developing Therapies To Improve Cognitive Abilities of Individuals with Down Syndrome

Tuesday, April 8, 2014, 7:00 PM

Come and learn about the revolution within the Down syndrome scientific community to begin developing viable pharmacotherapies for children and adults with Down syndrome.

For too many years, the complexities associated with Down syndrome had led many physicians and scientists to throw up their hands and ask parents to accept their child’s challenging fate. Over the last two decades a small group of dedicated scientists have revisited this very same complexity problem and have made some incredible discoveries. For the first time, neuroscientists and pharmaceutical companies are working with parents to make the dream, that every individual with Down syndrome can live and work independently, an attainable reality.

Grace Auditorium, One Bungtown Road, Cold Spring Harbor, NY

Click Dr. Garner for the flyer

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Alexander’s Angels and DSAF Present World Down Syndrome Day Celebration

Saturday, March 22nd and Sunday March 23rd

Proceeds from the following events will benefit Down syndrome research:

The activities below will take place at Adelphi University’s Performing Arts Center in Garden City

Saturday, March 22 – Believe in the Possibilities… (flyer – front and back – attached)**

– 4:30 to 6:00 p.m. -Why is Down syndrome research important? – FREE of charge**

– 6:15 to 7:00 p.m. -Reception – $20.00**

– 7:30 to 9:30 p.m. – Let the Angels In,Benefit Dance Performance by NuBella – $25.00**

Sunday, March 23

– 3:00 to 5:00 p.m. – Let the Angels In,Benefit Dance Performance by NuBella – $25.00**

Click here for the flyer and to register

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3rd World Down Syndrome Day Conference by the Down Syndrome International

“Health and Wellbeing – Access and Equality for All”

March 21, 2014, 1:30pm-6pm

United Nations Headquarters in New York, Economic and Social Council Chamber

Click here for more information on the conference

Click here to register

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DSAF Presents Making the Most of Teaching Assistant and Aide Support in the Classroom

Presented by: Diane Ripple, M.A., Education Consultant, Consulting that Makes a Difference, Inc.

Thursday, March 20, 2014, 7:00 PM – 9:00 PM

at the Ronkonkoma Fire District Building

Click here for more information

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DSCLI Presents Strategies for Making the Kindergarten and Early Elementary Years Successful for Your Child With Down Syndrome

Kathleen M. Feeley, PhD, BCBA – Associate Professor and Director for the Center for Community Inclusion, LIU Post

Thursday, March 20, 2014, 7:00 PM

Suffolk YJCC, 74 Hauppauge Road, Commack, 11725

Hall of Fame Room

This workshop will provide families of young children with Down syndrome and the professionals who work with them important information as they prepare for not only the transition from preschool to kindergarten but for success throughout the early elementary years. Suggestions for preschool programming, transition planning, and collaborating effectively with professionals will be presented, followed by an overview of academic, social, and behavioral supports that will lead to a successful elementary school experience.

Please click DSCLI Kathleen Feeley for flyer

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FUNraiser at Friendly’s on Monday, March 17, 2014

5:00 – 8:00 PM hosted by Alexander’s Angels and The Down Syndrome Advocacy Foundation

 

Bayshore, Commack, & Smithtown locations

Please go to www.alexandersangels.org for more information

MUST PRESENT FLYER

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ACDS Annual St. Patrick’s Celebration

Saturday, March 8th, 2014, 6:30 PM

St. Anges Parish Center, Rockville Centre

Please join for an exciting fundraising event which supports programs and services at ACDS

For more information and to register, click here

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The International Down Syndrome Coalition’s 2014 Kick Off to World Down Syndrome Day Meet Up at

Great Wolf Lodge!

 

Weekend gathering at ALL Great Wolf Lodge locations on March 7th – March 9th, 2014

Click here for more information.

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DSAF Presents: Make Inclusion Successful at the Secondary Level

Presented by Dr. Sanja Cale, Board Certified Behavior Analyst, Doctoral Assistant Professor at SUNY Old Westbury

 

Thursday, February 27, 2014

7:00 PM – 9:00 PM

at the Ronkonkoma Fire District Building

Click here for flyer

Please RSVP at www.dsafonline.org to RSVP

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DSCLI Presents Dr. Moris A. Angulo, MD, Pediatric Endocrinologist and Director of Medical Genetics, Winthrop University Hospital

The Importance of Endocrine (Hormonal) Evaluation in Down Syndrome

Tuesday, January 14, 2014, 7:30 PM

 

Good Samaritan Pediatric Specialty Care, 655 Deer Park Avenue in Babylon

Click here for the flyer and more information

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DSCLI’s Celebration of the New Year Party

Sunday, January 12th, 2014

11:30 AM – 2:30 PM

Knights of Columbus

9 Hewitt Square #A, East Northport, 11731

$25 per family

(Only Immediate Family Please)

Please call if you have any questions.

Lunch and dessert included

DJ with kids’ entertainment and games

Please click here for flyer and form to be returned

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DSAF presents Inclusion Models and Strategies for Successful Inclusion

This two part workshop will provide an overview of successful models, followed by a series of strategies to address curriculum modifications, in class accommodations, strategies to address challenging behavior, as well as strategies to include children with disabilities in extracurricular activities. It will address both elementary and secondary students.

Presented By:

Dr. Kathleen M. Feeley, BCBA

Dates:

Monday, December 9, 2013

Monday, December 16, 2013

Times:

5:30 PM – 8:30 PM

Location:

LIU Post Campus of Long Island University

Humanities Hall, Room 116

click here for flyer and more information

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The 10th Annual Conference on Best Practices in the Education of Children with Down Syndrome

November 22-23, 2013

Long Island University Post Campus

Hillwood Commons

720 Northern Blvd., Brookville, NY 11548

**Sponsored by The Down Syndrome Advocacy Foundation and The Center for Community Inclusion at LIU Post**

As always, this year’s 2 day conference addresses the needs of children/students with Down syndrome from infant and toddler through young adulthood. One of the themes of this year’s conference is on the transition process and components of educational programming leading individuals with Down syndrome to meet their fullest potential.

Click here for more information and the complete brochure

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DSAF’s Reading Skills (Decoding and Comprehension)

Thursday, November 21, 2013

7:00 PM – 9:00 PM

at the Ronkonkoma Fire District Building

 

Discover & navigate through a CODiE award winning software reading program, Reading A-Z. This online reading program provides families and school districts with thousands of appropriate resources to encourage educators and parents to individualize reading instruction for all learners and grade levels. Learn and explore what this curriculum has to offer from fluency passages, decoding activities and printable leveled books with corresponding comprehension worksheets and much more! This workshop will also display modified ways to utilize the materials for students with special learning needs. Come with questions to gain strategies!

Click here for more information

Please RSVP

 

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DSCLI Presents Randy Young, Education Outreach Specialist LIPC and Administrator for TRIAD

Monday, November 4, 2013, 7:30 PM-9 PM

 

Good Samaritan Pediatric Specialty Care, 655 Deer Park Avenue in Babylon

This free workshop explores what “AT” assistive technology is and provides an overview of the role that AT plays in a student’s “IEP”, Individualized Education Plan. We will examine what questions should be considered in the assessment process. Resources will be provided to assist participants in furthering their understanding of AT. This interactive workshop will demo the ipad as one example of an accessible AT device that can improve outcomes for students.

Click DSCLI Randy Young TRIAD for flyer with more information

 

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3rd Annual Golf Outing to benefit The Down Syndrome Advocacy Foundation (DSAF)

Wednesday, October 16, 2013

Pine Ridge Golf Course

County Road 83

Coram, New York

Go to www.dsafonline.org for more information

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Romp for Research

A fun family event to raise money and awareness for the Down Syndrome Research and Treatment Foundation

Sunday, October 13, 2013 – 12:30 PM-4:00 PM

Asphalt Green, NYC

Click here to register, make a donation, or learn more about the event

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DSRTF hosts our latest Down Syndrome Cognition Research Update

Wednesday, October 9, 7:00 PM to 9:30 PM

Free and open to all, this program is being held in conjunction with ACDS, Inc. — “serving children and adults with Down syndrome, autism, and other developmental disabilities” — and will take place at their headquarters in Plainview, LI DSRTF’s Chief Scientific Officer, Dr. Michael Harpold, will give an update on current initiatives, ongoing clinical trials, and potential new directions in Ds cognition research.

Click here to register for this event.

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Alexander’s Angels Long Island’s 7th Annual Buddy Walk

Sunday, October 5th, 2013 from 10:30 AM- 3 PM

Tanner Park, Copiague

Click here to register or to make a donation

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Special Day 4 Special Kids

Sept. 22, 2013, West Hills Day Camp, Huntington

Lets children with special needs enjoy a fun-filled day of camp. Admission is free! Activities include ziplining, Euro bounce, inflatables, swimming, basketball, playgrounds, arts and crafts, and much more.

Click here to register and for more information.

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DSCLI’s Family Fun Day

Sunday, September 8th

2:30 pm – 6:30 pm

Crab Meadow Beach, off Waterside Avenue, Northport

Activities to be provided for the children.

Bring the family, the beach toys, and the cooler with food and beverages for your family!

There will be a dessert table set up for each family to share their favorite dessert with the group.

Please RSVP at connect@dscli.org

Click Family Fun Day Sept 8 2013 for flyer

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Three Day Institute on Educating Children with Down Syndrome

July 30, 31 & August 1, 2013

Liu post – humanities bldg., room 119

For a variety of reasons more and more children with Down syndrome are being educated in our local schools. LIU Post is holding a three-day institute that is designed to prepare professionals to meet the needs of students with Down syndrome. Please view the attached flyer for session details and a registration form. You can attend one or more sessions – multiple sessions are offered at a reduced cost. Please forward this flyer to your colleagues and families to spread the word.

Click DS Inst 2013 flyer copy for flyer and more information

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DSCLI will be co-sponsoring the Argentine film “Anita”

Wednesday, July 24th at 7 PM

Suffolk YJCC, 74 Hauppauge Road, Commack, 11725

This critically acclaimed film stars an actress with Down syndrome and the film festival will also feature a discussion panel. This film is part of a week long film festival from Sunday, July 21, thru Sunday, July 28, 2013.

Click here for more details and pricing

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East End SEPTO presents Suffolk County Special Needs Support group

Sunday, July 21st at 9:30am in West Islip

Contact: Chemene Vizzi at cvizzi9@gmail.com for info and directions

Peer-led support group created for families of special needs children and assist them with facing their unique challenges in their daily lives. The best support is sharing your journey with others in similar situations.

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Tommie Cares Foundation (https://www.facebook.com/TommieCares) free day on the water with half-day kayaking, stand up paddling (SUP), and more.

July 19th for those with Down syndrome and other special needs! More details for participants & volunteers: http://bit.ly/tcfny2013

Rye Playland in NY

Please contact: info@tommiecares.org for questions or concerns

Tommiecares.org

tothemax@tommiecares.org

831.239.9835

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DSAF presents AT in the IEP

Thursday, July 18, 2013

7:00 PM – 9:00 PM

Ronkonkoma Fire District Building

This workshop explores what “AT” assistive technology is and provides an overview of the role that AT can play in a student’s “IEP” Individualized Educational Plan. We will examine what questions should be considered in the assessment process. Resources will be provided to assist participants in furthering their understanding of AT. Examples of AT and learning apps. will be shared and demonstrated.

*If you have, bring your iPad or Tablet with you.

Click here for flyer

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Juliet Dolan’s “Let the Angels In” Benefit Dance Performance – Proceeds go to Alexander’s Angels

Performances are June 28, 29, & 30th 2013

Triskelion Arts Aldous Theater in Brooklyn

Juliet’s first production ever of her dancing career will be “for the most beautiful and unique among us” with all funds raised going to Alexander’s Angels.

Juliet’s sister Jillian who has Down syndrome is a guest performer on the show!!!

Click here for the BenefitDancePerformanceInvite

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Bicycle Camp for Individuals With Disabilities

Collaborated by iCan Shine (Formerly Lose The Training Wheels), DSAF, & The Center for Community Inclusion at LIU Post

June 24 – June 28, 2013

Teaches individuals with disabilities to independently ride a conventional two-wheeler with a success rate of approximately 80%.

Click 2013 iCan Bike Flyer for additional qualifications and details

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THE JÉRÔME LEJEUNE FOUNDATION, USA

INVITES YOU TO A BENEFIT FOUNDATION LAUNCH – COCKTAIL RECEPTION

TO BENEFIT THE LAUNCH OF THE FOUNDATION IN THE UNITED STATES

HONORED GUESTS:

MADAME JÉRÔME LEJEUNE

Widow of the distinguished French geneticist who discovered the cause of Down syndrome and

DR. WILLIAM MOBLEY, MD, PHD

Distinguished Professor and Chair of Neuroscience

Director, Down Syndrome Center for Research and Treatment

University of California, San Diego

SPEAKING ON DRAMATIC SCIENTIFIC ADVANCEMENTS IN THE FIELD OF GENETIC INTELLECTUAL DISABILITIES

THURSDAY, JUNE 13, 2013, SIX-THIRTY IN THE EVENING

CONSULATE GENERAL OF FRANCE

934 FIFTH AVENUE AT 75TH STREET

NEW YORK

Click here to download invitation and to purchase tickets

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DSCLI’s Mom’s Night Out at Chocolate With a Twist

Thursday, June 13th, 2013, 7 PM-9 PM

$25 per person includes chocolate mold with toppings, a box, chocolate fountain with treats to dip, and wine/soda.

Click DSCLI MOMS NIGHT CHOCOLATE TWIST for the flyer

RSVP by June 7th at connect@dscli.org

Any questions, call Shana at 631-678-6810

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BRIDGING THE GAPS: CONNECTING MEDICAL, EDUCATIONAL, AND FAMILIAL SYSTEMS

Presented by: Interagency Coordinated Council of Long Island

Thursday, June 13, 2013, 9:00 am – 2:00 pm

This conference will provide tools and strategies for medical professionals, educators, families, and community providers. The event is designed to build communication, provide networking opportunities and information resources related to families who have children and young adults with special needs.

Nassau University Medical Center Amphitheatre

2201 Hempstead Turnpike

East Meadow, NY 11554

For more information, contact:

Stacey Astachovsky, 516.496.7550 ext 302240 or sastachovsky@fegs.org

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Building Effective Educational Teams -Policy makers and educational professionals will come together to listen and interact with the Acting Assistant Secretary of the Office of Special Education and Rehabilitative Services

Friday, June 7th, 2013, 9 AM-12 PM

 

The Tilles Center at LIU Post

Click here for flyer

Seating is limited

For more information, go to www.liparentcenterliu.org or call 516-589-4562

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PREVENTING PARENT BURNOUT FOR PARENTS OF CHILDREN WITH SPECIAL NEEDS – P2P WEBINAR

June 3, 2013, 6:00 PM – 7:00 PM

 

Extraordinary parenting responsibilities create extraordinary pressures on parents. At the same time, parenting a child with special needs requires energy, focus, and enthusiasm to be effective in our role. The better off we are emotionally and physically, the better off our families will be.

Register here

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Friar’s Golden Kids Carnival – A Carnival for Children with Special Needs

Saturday, May 18, 2013, 10:00 AM to 2:00 PM

St. Anthony’s High School

The day will include inflatable rides, carnival games, a DJ, and other appropriate activities for our guests. There is no cost to families, although a free will offering will be greatly appreciated. Lunch will be provided.

Register by May 5th

Click Friars Golden Kids Carnival – Participant Letter, Flyer, & Registration Form copy for flyer and additional details

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PowerPals Presents a Bike Riding Event “Take Off The Training Wheels”

Saturday, May 18, 2013, 11:30 AM – 12:30 PM

Vincent Smith School in Port Washington, 322 Port Washington Blvd.

This one day event is free. Additional weekly classes will be offered on Saturdays at 11:30 AM – 12 :30 PM (3 classes for $90).

Contact Rose at 917-701-6252 or e-mail powerpals1@gmail.com

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DSAF Presents a Panel of Educators who have Children with Down Syndrome in their General Education Classes

Thursday, May 16, 2013, 7:00 PM – 9:00 PM at the Ronkonkoma Fire District Building

A Panel of professionals will provide information regarding implementation of curriculum modifications and fostering relationships.

A great opportunity to learn what’s going on in elementary schools and to ask questions.

Find out how successful children with Down syndrome can be in general education settings.

Please pass on and invite your district personnel. Important also for children who will be transitioning to kindergarten this fall.

Click DSAF+Suffolk+County+Meeting+Flyer+May+2013 for more information

Please email dsaf03@gmail.com or call 516-983-7008 to register to attend.

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ACDS LOGOAnnual Golf Classic

Thursday May 9th 2013

Golf will take place at Hempstead Golf & Country Club & Garden City Country Club. Registration, brunch and dinner will be at Hempstead Country Club

Courses are limited to 120 golfers. You may choose to play at either club on a first come, first serve basis

Golf Event Supports the programs and services at ACDS

Click here for more information

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The 3rd Annual All Kids Fair

April 28, 2013 from 10:00-4:30

A celebration of life on Long Island for kids and their families

“From Mommy & Me to the SAT!”

Melville Marriott

80 exhibitors and 24 classes with lots of fun things going on.

For more information go to www.AllKidsFair.com, or call Barbara Kaplan at 516-621-1446

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Special Olympics New York

Sunday, April 21, 2013

9 AM-3 PM at the Commack High School

Commack is looking for “Fans in the Stands” to have as many people as possible to attend this event and cheer the athletes. There will be an Olympic Village with games, a Young Athlete Program for ages 2-7 and food will also be available.

For additional information, contact Debbie Virga at 858-3623

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Nassau County Down Syndrome Support Group presents a discussion on IEPs: Developing and Decoding

What a Parent Needs to Know!

Tuesday, April 16, 2013, 7:00 PM – 9:00 PM

Oceanside Knights of Columbus

(downstairs room)

Guest Speaker: Yvonne Sinisgalli, LIPC

As LIPC’s Education Outreach Coordinator, Yvonne provides technical assistance to parents and professionals serving children with special needs. A former teacher for NYC’s Department of Education, Yvonne understands the demands placed on educators in challenging systems; And as a parent of a child with special needs, she has experienced the barriers and breakthroughs of raising a child in Long Island’s education system. Yvonne is a member of the NYS Education Department’s Commissioner’s Advisory Panel for Special Education representing parents and families; a past president of her school district’s SEPTA; and serves on various committees and task forces focused on improving outcomes for all children with special needs.

Click here for flyer

RSVP to Maggie Marshall-Hagan at marshallhagan@verizon.net or

call 516-678-6336.

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Long Island Special Needs Family Resource Expo

April 14, 2013, 11 AM – 4 PM

Huntington Hilton

Admission is Free

Click here for more information and to register

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Parent to Parent of NYS Presents: Parents and Caregivers are not Superhuman!

How can families be resilient? A talk with Parent to Parent Executive Director

Janice Fitzgerald

Friday, April 12th, 2013, 10:00am – 12:00pm

As the parent of John, a young man with an autism spectrum disorder and developmental disabilities, Janice has worked to support her son in reaching his potential, which now includes competitive employment and supported independent living. She often asks one question – how do we know what John can do unless we let him try (with supports)? She lives in the Adirondack Mountains near Saranac Lake, NY. The environment and outdoor recreation are important to her family and has challenged them to be more confident and self-sufficient individuals. Parent to Parent of NYS assists families when they learn their child has a disability.

415-A Oser Avenue

Hauppauge, NY 11788

MUST RSVP! Please call Valerie Reid or Valerie Stammelman 631-434-6196

Or email at liparent2parent@verizon.net

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DSAF’s Resource Meeting for New Parents of Children with Down Syndrome

Thursday, March 28, 2013 , 7:00 PM – 9:00 PM

Come meet members of DSAF, and obtain information to help you access important resources. The decisions families make early on in their child’s development impact them for the rest of their lives

Held at DSAF’s Office

77 Arkay Drive (Microcad)

Hauppauge, NY 11788

**Please call 516-983-7008 or

Email dsaf03@gmail.com

to register to attend

Click here for flyer with directions

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Caring Bunny Visits Walt Whitman Mall

Sunday, March 24, 2013, 9-10:30 AM

Must RSVP at www.abilitypath.org to reserve a time.

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Alexander’s Angels Charity Night for Down Syndrome

NY Islanders vs Florida Panthers Ice Hockey Game

March 24 at 5 p.m.

Nassau County Memorial Coliseum, Uniondale

Click here for Flyer with details

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DSAF Presents Successful Strategies at the Secondary Level for Students with Down Syndrome

Presenter: Diane Ripple, M.A., Education Consultant

Thursday, March 21, 2013

7:00 PM – 9:00 PM

Location: The Ronkonkoma Fire District Building, the new Suffolk County Meeting Location for 2013**

This workshop will offer academic tools, school-based vocational ideas and social strategies for students at the secondary level.

Come learn ways to make school meaningful and productive for students with Down syndrome beyond elementary school.

Click here for more information

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World Down Syndrome Day “Right To Work” Conference 2013 – Register Today!

Conference at the United Nations Headquarters in New York, USA.

Thursday, March 21, 2013

10am – 6pm

Location: Conference Room 4, United Nations Headquarters, New York City

“Please join us for this exciting programme as we come together to build awareness of Down syndrome around the world, to learn about the importance of education, health and well-being, and support for employment, independent living and community participation in realising the fundamental right of people with Down syndrome to work, and to showcase some of the work that is being done by organisations in different countries to further employment opportunities for people with disabilities”. There will be an opportunity to to network with speakers, Down syndrome organizations and all Conference delegates.

REGISTRATION IS FREE and easy to do. Simply follow the link below to complete the online form:

http://worlddownsyndromeday.org/wdsd-conference-2013/registration-form

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Great Tasting Night at Friendly’s on Wednesday, March 20, 2013 from 5:00 – 8:00 PM hosted by Alexander’s Angels

Have dinner at the following Long Island Friendly’s and Friendly’s will donate a percentage of all sales taking place during the event, including take-outs to Down Syndrome Research

Bayshore, Bellmore, Copiague, East Northport, Farmingdale, Hampton Bays, Hicksville, Levittown, Massapequa, Mineola, North Babylon, Smithtown

FLYER MUST BE PRESENTGo to www.alexandersangels.org or click here for the flyer.

Click here for the East Northport Friendly’s Flyer

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2nd Assistive Technology Fair Hosted by Suffolk Independent Living Organization (SILO)

Wednesday March 20th

 

The latest in assistive technology from the country’s top suppliers. This is a FREE event for all of Long Island. You will see what’s new in devices for the blind, deaf and other disabled persons.

Click here for the flyer and complete information

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DSCLI’s Guest Speaker – Dr. Dmitriy Vaysman Pediatric Pulmonologist & Director of the Pediatric Sleep Center

Good Samaritan Pediatric Specialty Care

Wednesday, March 13, 2013

7:00 PM

655 Deer Park Avenue, Babylon (631)321-2100

Come and learn about the signs and symptoms of sleep apnea, the diagnosis, and possible treatment options. Some 50 – 100% of all individuals with Down syndrome suffer from sleep apnea and many go undiagnosed.

Meet other parents as well and find out about local resources and events that are available to you and your child here on Long Island.

RSVP at connect@dscli.org or on DSCLI on Facebook

For more information, call Virginia at 631-261-8332

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Training to provide new, current and those interested in becoming CSE/CPSE Parent members with a better understanding of their role including the function of the Committees, knowledge of basic vocabulary, laws, and regulations, and enhancement of communication skills with other Committee members

Monday March 11th

Hosted by The Regional Special Education Technical Assistance Support Center Eastern Suffolk BOCES together with the Long Island Parent Center.

Click here for the flyer and complete information

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DSCLI Family Bowling & Pizza

Sunday, March 10, 2013 from 4-6 PM

AMF Syosset Lanes located at 111 Eileen Way, Syosset, NY 11791 (516) 921-7575

$16.50 pp includes unlimited bowling, shoe rental, pizza, and soda

Space is limited. Form and payment must be received by March 7th.

Go to www.amf.com/syossetlanes for directions.

Click DSCLIBowling2013Flyer for flyer

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The ACDS ANNUAL ST. PATRICK’S CELEBRATION

SATURDAY, March 2nd from 6 p.m. to 10:00 pm

St. Agnes Parish Center, Rockville Centre. Honoring Liz Lawlor Campbell & Jane Shimkin

Fun, Food, Drinks, Music and Raffle prizes – to support ACDS, serving children and adults with Down syndrome and other developmental disabilities.

Seating is limited, get your tickets early. $50 per person, 21 and over, includes buffet dinner and open bar.

Order tickets and sponsorships at:

https://3654.thankyou4caring.org/Pat2013?erid=24380&trid=d707fffc-623e-4e87-bef2-c2407603544f

Enjoy a wonderful evening, filled with Irish music by Martin Flynn, delicious food provided by Kasey’s Kitchen & Cocktails of Rockville Centre and fantastic raffles.

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Online Concert from Sarah Conant to Kick Off World Down Syndrome Day to benefit International Down Syndrome Coalition

Saturday, March 2nd at 8:00 PM EST

$3.00 a ticket

Click here for more information

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The NYS Community of Practice on Family, School and Community Collaboration together with the IDEA Partnership will be hosting a webinar which will be presented by Elaine Mulligan, Project Director of NICHCY.

Friday March 1st

There is no cost to participate and all are welcome.

Click here for the flyer and complete information

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DSCLI’s Mom’s Night Out at The Melting Pot

Thursday, February 28th, 2013 at 8:00 PM

2377 Broad Hollow Rd, Farmingdale, 11735, (631) 752-4242

Please join us for chocolate fondue dessert. Please feel free to bring your iphone, itouch, or ipad and share helpful fun and educational apps.

Please RSVP. See DSCLI Mom’s Night Out 2 Feb 2013 for more information

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Alexander’s Angels Presents: The Up of Down: An Insight Into The World of Down Syndrome

A panel of experts in various fields,self-advocates, and family members touched by Down syndrome

February 4th, 7th, 13th, 20th, 25th of 2013 at 8:00 PM

Click for The+Up+of+Down+~+FinalFlyer2013(1)

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DSAF January 2013 Suffolk County Workshop, The Fit Learning Method – Training core academic skills to fluency

Thursday, January 17, 2013

6:30 PM – 9:30 PM

Presenter: Kimberly Berens, Ph.D., BCBA-D

Founding Director-Fit Learning

The Fit Learning Method isolates core reading, comprehension, math, writing, and thinking skills and trains them to fluency – rapid processing speed and a measure of true mastery or proficiency. Moving your child to fluency in these critical targets results in improved memory, heightened confidence, increased resistance to distractions and fatigue, and the ability to quickly and effortlessly learn new things. Such gains are essential for every kind of learner: gifted and talented, average, struggling, or learning disabled.

Held at Ronkonkoma Fire District Building

**DSAF’s New Suffolk County Meeting Location for 2013**

Please RSVP by emailing dsaf03@gmail.com or

call 516-983-7008 to register to attend.

For more information about Down Syndrome Advocacy Foundation, click here

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DSCLI’s Annual Holiday Lunch (Cancelled)

Sunday, December 16, 201212-3

Knights of Columbus, 9 Hewitt Square # A, East Northport, NY 11731 (631) 262-1891

Please join us for our annual holiday lunch. There will be lunch, dessert, DJ, and crafts. Due to limited seating, please limit your party to immediate family. $25 per family. Please print and mail this attached form Holiday Lunch Flyer 2012 with tear off with your payment by December 8th.

Please contact Virginia at (631) 261-8332 if you have any questions.

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DSCLI’s Fundraiser at Napper Tandy’s in Smithtown

Please join us to help raise money for our organization’s programs. This is a fun adults night out with food, drinks, raffle baskets, and live entertainment. Feel free to invite friends!

Friday, November 9, 20127-10 PM

Featuring live music from Fivestone Band, Buffet Dinner, Well Drinks, Tap Beer, Wine, Soda, Raffles, and 50/50

$40.00 per person

Click DSCLIFundraiser2012flyer for more information

RSVP here

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DSAF 2nd Annual Golf Outing

All proceeds go to support the inclusion of individuals with Down syndrome in their schools and communities.

Thursday, October 25, 2012

Pine Ridge Golf Course, Coram

Go to www.dsafonline.org

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6th Annual Long Island Buddy Walk

Sunday, October 14, 2012 – 10:30 AM – 3:30 PM

Tanner Park, Copiague

Click Here to Register or make a donation

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Romp For Research

A fun family event to raise money and awareness for the Down Syndrome Research and Treatment Foundation

Sunday, October 7, 2012 – 2:30 PM-6:00 PM

Asphalt Green, NYC

Click here to register, make a donation, or learn more about the event

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DSCLI’s Annual Family Fun Day

Sunday, June 10, 2012

2:30 pm – 6:30 pm

Crab Meadow Beach, Waterside Avenue in Northport

Click DSCLI+5th+Annual+Family+Fun+Day+June+10(1) for the flyer

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HorseAbility’s Open House – Center for Equine Facilitated Programs

June 3, 2012 11am-2pm

A Fun Family Event including a horse show, crafts, face painting, a tour of the barn and facility, balloon animals, carnival games, fresh baked goods, and more.

Horse Parade at 12:00

Located at SUNY College of Old Westbury

For more information, go to www.horseability.org

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DSCLI’s Mom’s Night Out

Ciro’s Restaurant in Hauppauge

470 Wheeler Road/Route 111

Tuesday, May 15th, 2012 at 8:00 PM

Pasta Night Tuesdays include soup/salad, pasta entree, dessert, and coffee for $12.95 + tax and tip. Drinks Not Included.

Please RSVP by May 9th. Click here to RSVP

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Long Island Children’s Museum – ‘A Special Evening for Special Families’

by K.I.D.S. Plus/Northport-East Northport SEPTA

Saturday, May 12th, 6-9pm

Admission $5 per family

11 Davis Avenue Garden City, NY 11530

The museum will be closed to the public for 3 hours and open for our families only. A special sensory play area will be open.

Click LICM 2012 for flyer

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DDI’s Spring Festival

Sponsored by Starting Early

May 5, 2012 (raindate: May 6th)

25 Little Plains Rd, Huntington, 10 am to 2 pm

Please come out and help them raise money to renovate their school!

If you have any questions, please contact Rose Kennedy at 266-4415 or rose.kennedy@ddiinfo.org

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Friars Golden Kids Carnival

Saturday, April 28th at St. Anthony’s High School from 10:00 AM to 2:00 PM Carnival for children with special needs and their family members will include inflatable rides, carnival games, a DJ, lunch, and other activities. Free to attend, although a free will offering is greatly appreciated

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DDI’s Spring Festival

Lecture at Cold Spring Harbor Laboratory with Dr. Brian Skotko, MD, MPP

Keeping Children and Adolescents with Down Syndrome Healthy:

Medical Updates for Physicians, Parents, and Educators

Date: Monday, April 16th, 2012 at 7:00 PM

Board-certified medical geneticist at Children’s Hospital Boston, Massachusetts General Hospital, Brigham & Women’s Hospital, and Dana Farber Cancer InstituteInstructor, Children’s Hospital Boston, Harvard Medical School, Boston, MA | Click here for flyer

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Conference “Building the Future” at the UN

 

Date: Wednesday, March 21, 2012 – 10:00 AM-2:30 PM

You must register prior to the conference (only those with names on the list will be allowed to enter the building).

Registration is free. To register, send an e-mail to undsconference@gmail.com and include the following information: Name, e-mail, age, nationality, relation to Down Syndrome, Document # of passport, driver’s license, or student ID, your DOB, address.

For more information on the event, click here

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Great Tasting Night at Friendly’s on Monday, March 19, 2012 from 5:00 – 8:00 PM hosted by Alexander’s Angels

Have dinner at any Long Island Friendly’s or Avon, CT and Friendly’s will donate a percentage of all sales taking place during the event, including take-outs to Down Syndrome Research FLYER MUST BE PRESENT – Go to www.alexandersangels.org for the flyer.

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The 9th Annual Conference on Best Practices in the Education of Children with Down Syndrome

Sponsored by: The Down Syndrome Advocacy Foundation and The Center for Community Inclusion March 9-10, 2012 Long Island University Post Campus Click here for the brochure

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DSCLI Family Bowling & Pizza

Sunday, February 12, 2012 from 4-6 PM AMF Syosset Lanes located at 111 Eileen Way, Syosset, NY 11791 (516) 921-7575 $16 pp includes unlimited bowling, shoe rental, pizza, and soda Please RSVP at connect@dscli.org, or at DSCLI on Facebook, or call 631-678-6810. Space is limited. Please respond by February 7th. Go to www.amf.com/syossetlanes for directions.

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New Parents Meeting and Chiropractor Guest Speakers

Tuesday, January 17, 2012 Good Samaritan Pediatric Specialty Care located at 655 Deer Park Avenue in Babylon (631)321-2100 – Please note this location is NOT the hospital. 6:30 – New Parent Meeting 7:30 – DRS. Jamie Forster and Karissa Maggio from Forster Health Care (www.forsterhealthcare.com/home.htm) Learn how diet plays a critical role in your child’s health and what they should and shouldn’t be eating to promote better health. This can help the child’s sleep cycles, decrease congestion, improve digestion/elimination, brain functioning/learning skills, and skin conditions. Learn how to maintain your child’s good health with less need for prescription medication. Refreshments will be served RSVP at info@dscli.org Please contact Shana at 631-678-6810 for questions.

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DSCLI’s Annual Holiday Lunch

Sunday, December 11, 2011 12-3 Knights of Columbus, 9 Hewitt Square # A, East Northport, NY 11731 (631) 262-1891 Please join us for our annual holiday lunch. There will be lunch, dessert, DJ, and crafts. Due to limited seating, please limit your party to immediate family. $25 per family. Please contact Virginia at (631) 261-8332 if you have any questions.

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Financial Planning Workshop – Monday, November 14, 2011 at 7 PM

We invite all parents and caregivers of Children with Down Syndrome to attend an informative evening at Good Samaritan Hospital’s Center for Pediatric Specialty Care 655 Deer Park Avenue, Babylon, NY (631)321-2100. Guest speakers Marie Cantone and John Panaro with The Center for Wealth Preservation Please RSVP to Mary at (631)424-1071 For more information, click here

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Romp For Research

To Benefit DSRTF (Down Syndrome Research and Treatment Foundation) October 2, 2011 at 2:30 on the Asphalt Green in NYC. For more information, please go to www.dsrtf.org.

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5th Long Island Buddy Walk

Saturday, October 1st, 2011 Eisenhower Park, East Meadow, NY 10:30 A.M. – 3:00 P.M. For more information, please visit www.alexandersangels.org

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DSAF 1st Annual Golf Outing

Thursday, September 29,2011 Pine Ridge Golf Course, County Road 83, Coram, NY For more information, go to www.dsafonline.org

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DSCLI’S Annual Family Fun Day

Sunday, September 25, 2011 12:00 to 5:00 at Hoyt Farm in Commack 2 Playgrounds, animals, grassy field, softball field, nature trails, nature center, BBQ pits, and picnic tables under a covered pavilion. Fun activities provided for the children. Bring your own food. No alcoholic beverages permitted. Please feel free to bring a dessert to share with the group at the dessert table. $5.00 parking fee for non-smithtown residents. Please RSVP at connect@dscli.org . Go to www.smithtowninfo.com/Hoytfarm for directions.

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Mom’s Night Out

Thursday, August 18, 2011

7:30 PM at Chocolate With A Twist, 528 Larkfield Rd. E. Northport, NY, 11731 $20 pp which includes chocolate mold with supplies to decorate, box, glass of champagne and chocolate fountain with snacks

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4th Annual Family Fun Day

Saturday, June 11th 2:30 pm – 6:30 pm Crab Meadow Beach off Waterside Avenue, Northport For more info download our flyer: 4th Annual Family Fun Day (PDF)

New Parents Meeting (PDF)

Monday, June 27, 2011 7:00 PM At Good Samaritan’s Center For Pediatric Specialty Care 655 Deer Park Avenue Babylon, NY (631) 321-2100 This is a wonderful opportunity to meet other new and expectant parents of children with Down syndrome. Learn about local resources and events that are available right here on Long Island