View our Event Gallery
SUPPORT DSCLI
…………………..
DSCLI’s Winter Break Party
Sunday, February 26, 2017
12-3
Knights of Columbus in East Northport
$25 per family Please RSVP Click here to see flyer
PAST EVENTS
DSCLI’s Mom’s Night Out
Tuesday, March 1st, 2016
7:30 PM
The Refuge in Farmingdale
Click here for flyer.
…………………..
DSCLI’s Valentine’s Day Party
Sunday, January 31st, 2016
3-6 PM
$25 per family (Immediate family only)
Dinner, Dessert, DJ with kids entertainment and games included.
Click here for flyer and additional details.
Please RSVP by January 25th.
…………………..
DSCLI’s Annual Family Fun Day
Sunday, June 28th, 2015 at Hoyt Farm in Commack
2-6 PM
$12 Parking fee for non-residents of the town of Smithtown
Bring a cooler with food and drink. There will be a dessert table set up for each family to share a dessert.
Fun for the entire family with 2 playgrounds, animals, an open grassy field, a softball field, nature trails, a nature center, BBQ pits, and picnic tables under a covered pavilion.
Sprinkler Park will be open until 4:00.
Activities to be provided for children.
Please RSVP at
…………………..
Friar’s Golden Kids Carnival
Sunday, May 3, 2015, 1-4
Saint Anthony’s High School
…………………..
DSCLI Holiday Brunch
Sunday, January 11th, 2015, 12PM-3PM
LOCATION CHANGE: St. Anthony’s of Padua (lower Church), 20 Cheshire Place, East Northport, NY 11731
Click New Year Lunch Flyer 2015 with tear off for flyer and tear off to RSVP
Please mail in payment by January 3rd
…………………..
The 11th Annual Conference on Best Practices in the Education of Children with Down Syndrome Sponsored by The Down Syndrome Advocacy Foundation and The Center for Community Inclusion at LIU Post
December 5-6, 2014
Long Island University Post Campus, The Tilles Atrium, 720 Northern Blvd, Brookville, NY 11548
As always, this year’s 2 day conference addresses the needs of children/students with Down syndrome from infant and toddler through young adulthood. The theme of this year’s conference is meeting the medical needs of children with Down syndrome. For more detailed information, click here for the brochure, registration form and workshop descriptions.
If you have any questions, please call 516-299-3812 or e-mail
…………………..
Behavior Management Workshop
Tuesday, October 28, 2014, 7:00 PM
Achieve Beyond, 538 Broadhollow Road, 2nd Floor, Melville, NY 11747
This workshop will outline some basic behavior management strategies to use in a classroom and home setting. It will review the reasons behaviors occur (functions of behavior) and strategies to identify those functions of behavior. Please RSVP at , DSCLI on Facebook, or call Virginia at 631-261-8332.
Click here for flyer
…………………..
ACDS’ Annual Gala
This year ACDS is so proud and excited to honor two great individuals and their inspirational work in the DS Community, Miss Jamie Brewer of F/X American Horror Story and Dr. Brian Skotko, Co-director of the Down
Syndrome Program At Massachusetts General Hospital
October 25, 2014,The Garden City Hotel
Please consider a sponsorship, journal ad or donation to help support this great event!
We are also in need of silent auction prizes. For more information, please contact Laurie Schaefer at [email protected]
……………………
The Twenty-Second Annual Legislative Breakfast
Friday, October 17, 2014
Long Island Hilton Hotel, 598 Broadhollow Road, Melville
This event provides an opportunity to inform our elected officials about the needs and accomplishments of our family members with a disability.
For more information, please visit www.lifssac.com
……………………
Golf outing to benefit The Down Syndrome Advocacy Foundation
Thursday, October 16, 2014
Pine Ridge Golf Course, County Road 83, Coram, New York
Visit DSAF here
……………………
Romp for Research
A fun family event to raise money and awareness for the Down Syndrome Research and Treatment Foundation
Sunday, October 12, 2014 – 12:30 PM-4:00 PM
Asphalt Green, NYC
Click here to register, make a donation, or learn more about the event
……………………
Alexander’s Angels Long Island’s 8th Annual Buddy Walk
Saturday, October 11th, 2014 from 10:30 AM- 3 PM
Tanner Park, Copiague
Click here to register or to make a donation
……………………
Developing Therapies to Improve Cognitive Abilities in Individuals with Down Syndrome and Autism
Guest Speaker Professor Craig Garner of Stanford University
Sponsored by The Matthew Foundation
Sunday, October 5, 2014, 2 PM
Manhasset Public Library, 30 Onderdonk Avenue, Manhasset, NY 11030
Please RSVP to
……………………
Bicycle Camp for Individuals With Disabilities
Collaborated by iCan Bike (Formerly Lose The Training Wheels), DSAF, & The Center for Community Inclusion at LIU Post
August 11 – August 15th, 2014
Teaches individuals with disabilities to independently ride a conventional two-wheeler with a success rate of approximately 80%.
Click 2014 iCan Bike Flyer for additional qualifications and details
……………………
Huntington SEPTA 1 Day Bike Clinic to lose the training wheels
Saturday, June 7th, 2014
Click BikeCampflyer for flyer
……………………
DSCLI’s Family Fun Day
Sunday, June 1st, 2014
Crab Meadow Beach, off Waterside Avenue, Northport
Activities to be provided for the children.
Bring the family, the beach toys, and the cooler with food and beverages for your family! Pizza is also available to purchase at the restaurant on the beach.
There will be a dessert table set up for each family to share their favorite dessert with the group.
Click here for the flyer
……………………
DSCLI’s Mom’s Night Out at the Melting Pot
Tuesday, May 13, 2014, 7:30 PM
Please join us for a mom’s night out at the Melting Pot in Farmingdale for 3 varieties of chocolate fondue, soda, coffee, and hot tea. $16 per person includes the tax and gratuity.
……………………
ACDS 2014 Annual Golf Classic at Hempstead Golf & Country Club
Thursday, May 8, 2014
The outing, which will be shotgun format, will raise funds for ACDS, which provides lifetime resources for individuals with Down syndrome, autism and other developmental disabilities and their families.
The all-day event includes brunch, dinner and a special Awards Ceremony.
Go to www.acds.org for more details.
……………………
Down Syndrome Connection of Zurich & Cold Spring Harbor Laboratory Presents Speaker Craig C. Garner, Ph.D., Co-Director of the Center for Research and Treatment of Down Syndrome at Stanford University
Developing Therapies To Improve Cognitive Abilities of Individuals with Down Syndrome
Tuesday, April 8, 2014, 7:00 PM
Come and learn about the revolution within the Down syndrome scientific community to begin developing viable pharmacotherapies for children and adults with Down syndrome.
For too many years, the complexities associated with Down syndrome had led many physicians and scientists to throw up their hands and ask parents to accept their child’s challenging fate. Over the last two decades a small group of dedicated scientists have revisited this very same complexity problem and have made some incredible discoveries. For the first time, neuroscientists and pharmaceutical companies are working with parents to make the dream, that every individual with Down syndrome can live and work independently, an attainable reality.
Grace Auditorium, One Bungtown Road, Cold Spring Harbor, NY
Click Dr. Garner for the flyer
……………………
Alexander’s Angels and DSAF Present World Down Syndrome Day Celebration
Saturday, March 22nd and Sunday March 23rd
Proceeds from the following events will benefit Down syndrome research:
The activities below will take place at Adelphi University’s Performing Arts Center in Garden City
Saturday, March 22 – Believe in the Possibilities… (flyer – front and back – attached)**
– 4:30 to 6:00 p.m. -Why is Down syndrome research important? – FREE of charge**
– 6:15 to 7:00 p.m. -Reception – $20.00**
– 7:30 to 9:30 p.m. – Let the Angels In,Benefit Dance Performance by NuBella – $25.00**
Sunday, March 23
– 3:00 to 5:00 p.m. – Let the Angels In,Benefit Dance Performance by NuBella – $25.00**
Click here for the flyer and to register
……………………
3rd World Down Syndrome Day Conference by the Down Syndrome International
“Health and Wellbeing – Access and Equality for All”
March 21, 2014, 1:30pm-6pm
United Nations Headquarters in New York, Economic and Social Council Chamber
Click here for more information on the conference
Click here to register
……………………
DSAF Presents Making the Most of Teaching Assistant and Aide Support in the Classroom
Presented by: Diane Ripple, M.A., Education Consultant, Consulting that Makes a Difference, Inc.
Thursday, March 20, 2014, 7:00 PM – 9:00 PM
at the Ronkonkoma Fire District Building
Click here for more information
……………………
DSCLI Presents Strategies for Making the Kindergarten and Early Elementary Years Successful for Your Child With Down Syndrome
Kathleen M. Feeley, PhD, BCBA – Associate Professor and Director for the Center for Community Inclusion, LIU Post
Thursday, March 20, 2014, 7:00 PM
Suffolk YJCC, 74 Hauppauge Road, Commack, 11725
Hall of Fame Room
This workshop will provide families of young children with Down syndrome and the professionals who work with them important information as they prepare for not only the transition from preschool to kindergarten but for success throughout the early elementary years. Suggestions for preschool programming, transition planning, and collaborating effectively with professionals will be presented, followed by an overview of academic, social, and behavioral supports that will lead to a successful elementary school experience.
Please click DSCLI Kathleen Feeley for flyer
……………………
FUNraiser at Friendly’s on Monday, March 17, 2014
5:00 – 8:00 PM hosted by Alexander’s Angels and The Down Syndrome Advocacy Foundation
Bayshore, Commack, & Smithtown locations
Please go to www.alexandersangels.org for more information
MUST PRESENT FLYER
……………………
ACDS Annual St. Patrick’s Celebration
Saturday, March 8th, 2014, 6:30 PM
St. Anges Parish Center, Rockville Centre
Please join for an exciting fundraising event which supports programs and services at ACDS
For more information and to register, click here
……………………
……………………
DSAF Presents: Make Inclusion Successful at the Secondary Level
Thursday, February 27, 2014
7:00 PM – 9:00 PM
at the Ronkonkoma Fire District Building
Click here for flyer
Please RSVP at www.dsafonline.org to RSVP
……………………
DSCLI Presents Dr. Moris A. Angulo, MD, Pediatric Endocrinologist and Director of Medical Genetics, Winthrop University Hospital
The Importance of Endocrine (Hormonal) Evaluation in Down Syndrome
Tuesday, January 14, 2014, 7:30 PM
Good Samaritan Pediatric Specialty Care, 655 Deer Park Avenue in Babylon
Click here for the flyer and more information
……………………
DSCLI’s Celebration of the New Year Party
Sunday, January 12th, 2014
11:30 AM – 2:30 PM
Knights of Columbus
9 Hewitt Square #A, East Northport, 11731
$25 per family
(Only Immediate Family Please)
Please call if you have any questions.
Lunch and dessert included
DJ with kids’ entertainment and games
Please click here for flyer and form to be returned
……………………
DSAF presents Inclusion Models and Strategies for Successful Inclusion
This two part workshop will provide an overview of successful models, followed by a series of strategies to address curriculum modifications, in class accommodations, strategies to address challenging behavior, as well as strategies to include children with disabilities in extracurricular activities. It will address both elementary and secondary students.
Presented By:
Dr. Kathleen M. Feeley, BCBA
Dates:
Monday, December 9, 2013
Monday, December 16, 2013
Times:
5:30 PM – 8:30 PM
Location:
LIU Post Campus of Long Island University
Humanities Hall, Room 116
click here for flyer and more information
……………………
The 10th Annual Conference on Best Practices in the Education of Children with Down Syndrome
November 22-23, 2013
Long Island University Post Campus
Hillwood Commons
720 Northern Blvd., Brookville, NY 11548
**Sponsored by The Down Syndrome Advocacy Foundation and The Center for Community Inclusion at LIU Post**
As always, this year’s 2 day conference addresses the needs of children/students with Down syndrome from infant and toddler through young adulthood. One of the themes of this year’s conference is on the transition process and components of educational programming leading individuals with Down syndrome to meet their fullest potential.
Click here for more information and the complete brochure
……………………
DSAF’s Reading Skills (Decoding and Comprehension)
Thursday, November 21, 2013
7:00 PM – 9:00 PM
at the Ronkonkoma Fire District Building
Discover & navigate through a CODiE award winning software reading program, Reading A-Z. This online reading program provides families and school districts with thousands of appropriate resources to encourage educators and parents to individualize reading instruction for all learners and grade levels. Learn and explore what this curriculum has to offer from fluency passages, decoding activities and printable leveled books with corresponding comprehension worksheets and much more! This workshop will also display modified ways to utilize the materials for students with special learning needs. Come with questions to gain strategies!
Click here for more information
Please RSVP
……………………
DSCLI Presents Randy Young, Education Outreach Specialist LIPC and Administrator for TRIAD
Monday, November 4, 2013, 7:30 PM-9 PM
Good Samaritan Pediatric Specialty Care, 655 Deer Park Avenue in Babylon
This free workshop explores what “AT” assistive technology is and provides an overview of the role that AT plays in a student’s “IEP”, Individualized Education Plan. We will examine what questions should be considered in the assessment process. Resources will be provided to assist participants in furthering their understanding of AT. This interactive workshop will demo the ipad as one example of an accessible AT device that can improve outcomes for students.
Click DSCLI Randy Young TRIAD for flyer with more information
……………………
3rd Annual Golf Outing to benefit The Down Syndrome Advocacy Foundation (DSAF)
Wednesday, October 16, 2013
Pine Ridge Golf Course
County Road 83
Coram, New York
Go to www.dsafonline.org for more information
……………………
Romp for Research
A fun family event to raise money and awareness for the Down Syndrome Research and Treatment Foundation
Sunday, October 13, 2013 – 12:30 PM-4:00 PM
Asphalt Green, NYC
Click here to register, make a donation, or learn more about the event
……………………
DSRTF hosts our latest Down Syndrome Cognition Research Update
Wednesday, October 9, 7:00 PM to 9:30 PM
Free and open to all, this program is being held in conjunction with ACDS, Inc. — “serving children and adults with Down syndrome, autism, and other developmental disabilities” — and will take place at their headquarters in Plainview, LI DSRTF’s Chief Scientific Officer, Dr. Michael Harpold, will give an update on current initiatives, ongoing clinical trials, and potential new directions in Ds cognition research.
Click here to register for this event.
……………………
Alexander’s Angels Long Island’s 7th Annual Buddy Walk
Sunday, October 5th, 2013 from 10:30 AM- 3 PM
Tanner Park, Copiague
Click here to register or to make a donation
……………………
Special Day 4 Special Kids
Sept. 22, 2013, West Hills Day Camp, Huntington
Lets children with special needs enjoy a fun-filled day of camp. Admission is free! Activities include ziplining, Euro bounce, inflatables, swimming, basketball, playgrounds, arts and crafts, and much more.
Click here to register and for more information.
……………………
DSCLI’s Family Fun Day
Sunday, September 8th
2:30 pm – 6:30 pm
Crab Meadow Beach, off Waterside Avenue, Northport
Activities to be provided for the children.
Bring the family, the beach toys, and the cooler with food and beverages for your family!
There will be a dessert table set up for each family to share their favorite dessert with the group.
Please RSVP at
Click Family Fun Day Sept 8 2013 for flyer
……………………
Three Day Institute on Educating Children with Down Syndrome
July 30, 31 & August 1, 2013
Liu post – humanities bldg., room 119
For a variety of reasons more and more children with Down syndrome are being educated in our local schools. LIU Post is holding a three-day institute that is designed to prepare professionals to meet the needs of students with Down syndrome. Please view the attached flyer for session details and a registration form. You can attend one or more sessions – multiple sessions are offered at a reduced cost. Please forward this flyer to your colleagues and families to spread the word.
Click DS Inst 2013 flyer copy for flyer and more information
……………………
DSCLI will be co-sponsoring the Argentine film “Anita”
Wednesday, July 24th at 7 PM
Suffolk YJCC, 74 Hauppauge Road, Commack, 11725
This critically acclaimed film stars an actress with Down syndrome and the film festival will also feature a discussion panel. This film is part of a week long film festival from Sunday, July 21, thru Sunday, July 28, 2013.
Click here for more details and pricing
……………………
East End SEPTO presents Suffolk County Special Needs Support group
Sunday, July 21st at 9:30am in West Islip
Contact: Chemene Vizzi at for info and directions
Peer-led support group created for families of special needs children and assist them with facing their unique challenges in their daily lives. The best support is sharing your journey with others in similar situations.
……………………
Tommie Cares Foundation (https://www.facebook.com/TommieCares) free day on the water with half-day kayaking, stand up paddling (SUP), and more.
July 19th for those with Down syndrome and other special needs! More details for participants & volunteers: http://bit.ly/tcfny2013
Rye Playland in NY
Please contact: for questions or concerns
Tommiecares.org
831.239.9835
……………………
DSAF presents AT in the IEP
Thursday, July 18, 2013
7:00 PM – 9:00 PM
Ronkonkoma Fire District Building
This workshop explores what “AT” assistive technology is and provides an overview of the role that AT can play in a student’s “IEP” Individualized Educational Plan. We will examine what questions should be considered in the assessment process. Resources will be provided to assist participants in furthering their understanding of AT. Examples of AT and learning apps. will be shared and demonstrated.
*If you have, bring your iPad or Tablet with you.
Click here for flyer
……………………
Juliet Dolan’s “Let the Angels In” Benefit Dance Performance – Proceeds go to Alexander’s Angels
Performances are June 28, 29, & 30th 2013
Triskelion Arts Aldous Theater in Brooklyn
Juliet’s first production ever of her dancing career will be “for the most beautiful and unique among us” with all funds raised going to Alexander’s Angels.
Juliet’s sister Jillian who has Down syndrome is a guest performer on the show!!!
Click here for the BenefitDancePerformanceInvite
……………………
Bicycle Camp for Individuals With Disabilities
Collaborated by iCan Shine (Formerly Lose The Training Wheels), DSAF, & The Center for Community Inclusion at LIU Post
June 24 – June 28, 2013
Teaches individuals with disabilities to independently ride a conventional two-wheeler with a success rate of approximately 80%.
Click 2013 iCan Bike Flyer for additional qualifications and details
……………………
THE JÉRÔME LEJEUNE FOUNDATION, USA
INVITES YOU TO A BENEFIT FOUNDATION LAUNCH – COCKTAIL RECEPTION
TO BENEFIT THE LAUNCH OF THE FOUNDATION IN THE UNITED STATES
HONORED GUESTS:
MADAME JÉRÔME LEJEUNE
Widow of the distinguished French geneticist who discovered the cause of Down syndrome and
DR. WILLIAM MOBLEY, MD, PHD
Distinguished Professor and Chair of Neuroscience
Director, Down Syndrome Center for Research and Treatment
University of California, San Diego
SPEAKING ON DRAMATIC SCIENTIFIC ADVANCEMENTS IN THE FIELD OF GENETIC INTELLECTUAL DISABILITIES
THURSDAY, JUNE 13, 2013, SIX-THIRTY IN THE EVENING
CONSULATE GENERAL OF FRANCE
934 FIFTH AVENUE AT 75TH STREET
NEW YORK
Click here to download invitation and to purchase tickets
……………………
DSCLI’s Mom’s Night Out at Chocolate With a Twist
Thursday, June 13th, 2013, 7 PM-9 PM
$25 per person includes chocolate mold with toppings, a box, chocolate fountain with treats to dip, and wine/soda.
Click DSCLI MOMS NIGHT CHOCOLATE TWIST for the flyer
RSVP by June 7th at
Any questions, call Shana at 631-678-6810
……………………
BRIDGING THE GAPS: CONNECTING MEDICAL, EDUCATIONAL, AND FAMILIAL SYSTEMS
Presented by: Interagency Coordinated Council of Long Island
Thursday, June 13, 2013, 9:00 am – 2:00 pm
This conference will provide tools and strategies for medical professionals, educators, families, and community providers. The event is designed to build communication, provide networking opportunities and information resources related to families who have children and young adults with special needs.
Nassau University Medical Center Amphitheatre
2201 Hempstead Turnpike
East Meadow, NY 11554
For more information, contact:
Stacey Astachovsky, 516.496.7550 ext 302240 or [email protected]
……………………
Building Effective Educational Teams -Policy makers and educational professionals will come together to listen and interact with the Acting Assistant Secretary of the Office of Special Education and Rehabilitative Services
Friday, June 7th, 2013, 9 AM-12 PM
The Tilles Center at LIU Post
Click here for flyer
Seating is limited
For more information, go to www.liparentcenterliu.org or call 516-589-4562
……………………
PREVENTING PARENT BURNOUT FOR PARENTS OF CHILDREN WITH SPECIAL NEEDS – P2P WEBINAR
June 3, 2013, 6:00 PM – 7:00 PM
Extraordinary parenting responsibilities create extraordinary pressures on parents. At the same time, parenting a child with special needs requires energy, focus, and enthusiasm to be effective in our role. The better off we are emotionally and physically, the better off our families will be.
Register here
……………………
Friar’s Golden Kids Carnival – A Carnival for Children with Special Needs
Saturday, May 18, 2013, 10:00 AM to 2:00 PM
St. Anthony’s High School
The day will include inflatable rides, carnival games, a DJ, and other appropriate activities for our guests. There is no cost to families, although a free will offering will be greatly appreciated. Lunch will be provided.
Register by May 5th
Click Friars Golden Kids Carnival – Participant Letter, Flyer, & Registration Form copy for flyer and additional details
……………………
PowerPals Presents a Bike Riding Event “Take Off The Training Wheels”
Saturday, May 18, 2013, 11:30 AM – 12:30 PM
Vincent Smith School in Port Washington, 322 Port Washington Blvd.
This one day event is free. Additional weekly classes will be offered on Saturdays at 11:30 AM – 12 :30 PM (3 classes for $90).
Contact Rose at 917-701-6252 or e-mail
……………………
DSAF Presents a Panel of Educators who have Children with Down Syndrome in their General Education Classes
Thursday, May 16, 2013, 7:00 PM – 9:00 PM at the Ronkonkoma Fire District Building
A Panel of professionals will provide information regarding implementation of curriculum modifications and fostering relationships.
A great opportunity to learn what’s going on in elementary schools and to ask questions.
Find out how successful children with Down syndrome can be in general education settings.
Please pass on and invite your district personnel. Important also for children who will be transitioning to kindergarten this fall.
Click DSAF+Suffolk+County+Meeting+Flyer+May+2013 for more information
Please email or call 516-983-7008 to register to attend.
……………………
Annual Golf Classic
Thursday May 9th 2013
Golf will take place at Hempstead Golf & Country Club & Garden City Country Club. Registration, brunch and dinner will be at Hempstead Country Club
Courses are limited to 120 golfers. You may choose to play at either club on a first come, first serve basis
Golf Event Supports the programs and services at ACDS
Click here for more information
……………………
The 3rd Annual All Kids Fair
April 28, 2013 from 10:00-4:30
A celebration of life on Long Island for kids and their families
“From Mommy & Me to the SAT!”
Melville Marriott
80 exhibitors and 24 classes with lots of fun things going on.
For more information go to www.AllKidsFair.com, or call Barbara Kaplan at 516-621-1446
……………………
Special Olympics New York
Sunday, April 21, 2013
9 AM-3 PM at the Commack High School
Commack is looking for “Fans in the Stands” to have as many people as possible to attend this event and cheer the athletes. There will be an Olympic Village with games, a Young Athlete Program for ages 2-7 and food will also be available.
For additional information, contact Debbie Virga at 858-3623
……………………
Nassau County Down Syndrome Support Group presents a discussion on IEPs: Developing and Decoding
What a Parent Needs to Know!
Tuesday, April 16, 2013, 7:00 PM – 9:00 PM
Oceanside Knights of Columbus
(downstairs room)
Guest Speaker: Yvonne Sinisgalli, LIPC
As LIPC’s Education Outreach Coordinator, Yvonne provides technical assistance to parents and professionals serving children with special needs. A former teacher for NYC’s Department of Education, Yvonne understands the demands placed on educators in challenging systems; And as a parent of a child with special needs, she has experienced the barriers and breakthroughs of raising a child in Long Island’s education system. Yvonne is a member of the NYS Education Department’s Commissioner’s Advisory Panel for Special Education representing parents and families; a past president of her school district’s SEPTA; and serves on various committees and task forces focused on improving outcomes for all children with special needs.
Click here for flyer
RSVP to Maggie Marshall-Hagan at or
call 516-678-6336.
……………………
Long Island Special Needs Family Resource Expo
April 14, 2013, 11 AM – 4 PM
Huntington Hilton
Admission is Free
Click here for more information and to register
……………………
Parent to Parent of NYS Presents: Parents and Caregivers are not Superhuman!
How can families be resilient? A talk with Parent to Parent Executive Director
Janice Fitzgerald
Friday, April 12th, 2013, 10:00am – 12:00pm
As the parent of John, a young man with an autism spectrum disorder and developmental disabilities, Janice has worked to support her son in reaching his potential, which now includes competitive employment and supported independent living. She often asks one question – how do we know what John can do unless we let him try (with supports)? She lives in the Adirondack Mountains near Saranac Lake, NY. The environment and outdoor recreation are important to her family and has challenged them to be more confident and self-sufficient individuals. Parent to Parent of NYS assists families when they learn their child has a disability.
415-A Oser Avenue
Hauppauge, NY 11788
MUST RSVP! Please call Valerie Reid or Valerie Stammelman 631-434-6196
Or email at
……………………
DSAF’s Resource Meeting for New Parents of Children with Down Syndrome
Thursday, March 28, 2013 , 7:00 PM – 9:00 PM
Come meet members of DSAF, and obtain information to help you access important resources. The decisions families make early on in their child’s development impact them for the rest of their lives
Held at DSAF’s Office
77 Arkay Drive (Microcad)
Hauppauge, NY 11788
**Please call 516-983-7008 or
Email [email protected]
to register to attend
Click here for flyer with directions
……………………
Caring Bunny Visits Walt Whitman Mall
Sunday, March 24, 2013, 9-10:30 AM
Must RSVP at www.abilitypath.org to reserve a time.
……………………
Alexander’s Angels Charity Night for Down Syndrome
NY Islanders vs Florida Panthers Ice Hockey Game
March 24 at 5 p.m.
Nassau County Memorial Coliseum, Uniondale
Click here for Flyer with details
……………………
DSAF Presents Successful Strategies at the Secondary Level for Students with Down Syndrome
Presenter: Diane Ripple, M.A., Education Consultant
Thursday, March 21, 2013
7:00 PM – 9:00 PM
Location: The Ronkonkoma Fire District Building, the new Suffolk County Meeting Location for 2013**
This workshop will offer academic tools, school-based vocational ideas and social strategies for students at the secondary level.
Come learn ways to make school meaningful and productive for students with Down syndrome beyond elementary school.
Click here for more information
……………………
World Down Syndrome Day “Right To Work” Conference 2013 – Register Today!
Conference at the United Nations Headquarters in New York, USA.
Thursday, March 21, 2013
10am – 6pm
Location: Conference Room 4, United Nations Headquarters, New York City
“Please join us for this exciting programme as we come together to build awareness of Down syndrome around the world, to learn about the importance of education, health and well-being, and support for employment, independent living and community participation in realising the fundamental right of people with Down syndrome to work, and to showcase some of the work that is being done by organisations in different countries to further employment opportunities for people with disabilities”. There will be an opportunity to to network with speakers, Down syndrome organizations and all Conference delegates.
REGISTRATION IS FREE and easy to do. Simply follow the link below to complete the online form:
http://worlddownsyndromeday.org/wdsd-conference-2013/registration-form
……………………
Great Tasting Night at Friendly’s on Wednesday, March 20, 2013 from 5:00 – 8:00 PM hosted by Alexander’s Angels
Have dinner at the following Long Island Friendly’s and Friendly’s will donate a percentage of all sales taking place during the event, including take-outs to Down Syndrome Research
Bayshore, Bellmore, Copiague, East Northport, Farmingdale, Hampton Bays, Hicksville, Levittown, Massapequa, Mineola, North Babylon, Smithtown
FLYER MUST BE PRESENT – Go to www.alexandersangels.org or click here for the flyer.
Click here for the East Northport Friendly’s Flyer
……………………
2nd Assistive Technology Fair Hosted by Suffolk Independent Living Organization (SILO)
Wednesday March 20th
The latest in assistive technology from the country’s top suppliers. This is a FREE event for all of Long Island. You will see what’s new in devices for the blind, deaf and other disabled persons.
Click here for the flyer and complete information
……………………
DSCLI’s Guest Speaker – Dr. Dmitriy Vaysman Pediatric Pulmonologist & Director of the Pediatric Sleep Center
Good Samaritan Pediatric Specialty Care
Wednesday, March 13, 2013
7:00 PM
655 Deer Park Avenue, Babylon (631)321-2100
Come and learn about the signs and symptoms of sleep apnea, the diagnosis, and possible treatment options. Some 50 – 100% of all individuals with Down syndrome suffer from sleep apnea and many go undiagnosed.
Meet other parents as well and find out about local resources and events that are available to you and your child here on Long Island.
RSVP at [email protected] or on DSCLI on Facebook
For more information, call Virginia at 631-261-8332
……………………
Training to provide new, current and those interested in becoming CSE/CPSE Parent members with a better understanding of their role including the function of the Committees, knowledge of basic vocabulary, laws, and regulations, and enhancement of communication skills with other Committee members
Monday March 11th
Hosted by The Regional Special Education Technical Assistance Support Center Eastern Suffolk BOCES together with the Long Island Parent Center.
Click here for the flyer and complete information
……………………
DSCLI Family Bowling & Pizza
Sunday, March 10, 2013 from 4-6 PM
AMF Syosset Lanes located at 111 Eileen Way, Syosset, NY 11791 (516) 921-7575
$16.50 pp includes unlimited bowling, shoe rental, pizza, and soda
Space is limited. Form and payment must be received by March 7th.
Go to www.amf.com/syossetlanes for directions.
Click DSCLIBowling2013Flyer for flyer
……………………
The ACDS ANNUAL ST. PATRICK’S CELEBRATION
SATURDAY, March 2nd from 6 p.m. to 10:00 pm
St. Agnes Parish Center, Rockville Centre. Honoring Liz Lawlor Campbell & Jane Shimkin
Fun, Food, Drinks, Music and Raffle prizes – to support ACDS, serving children and adults with Down syndrome and other developmental disabilities.
Seating is limited, get your tickets early. $50 per person, 21 and over, includes buffet dinner and open bar.
Order tickets and sponsorships at:
https://
Enjoy a wonderful evening, filled with Irish music by Martin Flynn, delicious food provided by Kasey’s Kitchen & Cocktails of Rockville Centre and fantastic raffles.
……………………
Online Concert from Sarah Conant to Kick Off World Down Syndrome Day to benefit International Down Syndrome Coalition
Saturday, March 2nd at 8:00 PM EST
$3.00 a ticket
Click here for more information
……………………
The NYS Community of Practice on Family, School and Community Collaboration together with the IDEA Partnership will be hosting a webinar which will be presented by Elaine Mulligan, Project Director of NICHCY.
Friday March 1st
There is no cost to participate and all are welcome.
Click here for the flyer and complete information
……………………
DSCLI’s Mom’s Night Out at The Melting Pot
Thursday, February 28th, 2013 at 8:00 PM
2377 Broad Hollow Rd, Farmingdale, 11735, (631) 752-4242
Please join us for chocolate fondue dessert. Please feel free to bring your iphone, itouch, or ipad and share helpful fun and educational apps.
Please RSVP. See DSCLI Mom’s Night Out 2 Feb 2013 for more information
……………………
Alexander’s Angels Presents: The Up of Down: An Insight Into The World of Down Syndrome
A panel of experts in various fields,self-advocates, and family members touched by Down syndrome
February 4th, 7th, 13th, 20th, 25th of 2013 at 8:00 PM
Click for The+Up+of+Down+~+FinalFlyer2013(1)
……………………
DSAF January 2013 Suffolk County Workshop, The Fit Learning Method – Training core academic skills to fluency
Thursday, January 17, 2013
6:30 PM – 9:30 PM
Presenter: Kimberly Berens, Ph.D., BCBA-D
Founding Director-Fit Learning
The Fit Learning Method isolates core reading, comprehension, math, writing, and thinking skills and trains them to fluency – rapid processing speed and a measure of true mastery or proficiency. Moving your child to fluency in these critical targets results in improved memory, heightened confidence, increased resistance to distractions and fatigue, and the ability to quickly and effortlessly learn new things. Such gains are essential for every kind of learner: gifted and talented, average, struggling, or learning disabled.
Held at Ronkonkoma Fire District Building
**DSAF’s New Suffolk County Meeting Location for 2013**
Please RSVP by emailing [email protected] or
call 516-983-7008 to register to attend.
For more information about Down Syndrome Advocacy Foundation, click here
……………………
DSCLI’s Annual Holiday Lunch (Cancelled)
Sunday, December 16, 2012 – 12-3
Knights of Columbus, 9 Hewitt Square # A, East Northport, NY 11731 (631) 262-1891
Please join us for our annual holiday lunch. There will be lunch, dessert, DJ, and crafts. Due to limited seating, please limit your party to immediate family. $25 per family. Please print and mail this attached form Holiday Lunch Flyer 2012 with tear off with your payment by December 8th.
Please contact Virginia at (631) 261-8332 if you have any questions.
……………………
DSCLI’s Fundraiser at Napper Tandy’s in Smithtown
Please join us to help raise money for our organization’s programs. This is a fun adults night out with food, drinks, raffle baskets, and live entertainment. Feel free to invite friends!
Friday, November 9, 2012 – 7-10 PM
Featuring live music from Fivestone Band, Buffet Dinner, Well Drinks, Tap Beer, Wine, Soda, Raffles, and 50/50
$40.00 per person
Click DSCLIFundraiser2012flyer for more information
RSVP here
……………………….
DSAF 2nd Annual Golf Outing
All proceeds go to support the inclusion of individuals with Down syndrome in their schools and communities.
Thursday, October 25, 2012
Pine Ridge Golf Course, Coram
Go to www.dsafonline.org
……………………
6th Annual Long Island Buddy Walk
Sunday, October 14, 2012 – 10:30 AM – 3:30 PM
Tanner Park, Copiague
Click Here to Register or make a donation
……………………
Romp For Research
A fun family event to raise money and awareness for the Down Syndrome Research and Treatment Foundation
Sunday, October 7, 2012 – 2:30 PM-6:00 PM
Asphalt Green, NYC
Click here to register, make a donation, or learn more about the event
……………………
DSCLI’s Annual Family Fun Day
Sunday, June 10, 2012
2:30 pm – 6:30 pm
Crab Meadow Beach, Waterside Avenue in Northport
Click DSCLI+5th+Annual+Family+Fun+Day+June+10(1) for the flyer
…………………….
HorseAbility’s Open House – Center for Equine Facilitated Programs
June 3, 2012 11am-2pm
A Fun Family Event including a horse show, crafts, face painting, a tour of the barn and facility, balloon animals, carnival games, fresh baked goods, and more.
Horse Parade at 12:00
Located at SUNY College of Old Westbury
For more information, go to www.horseability.org
…………………..
DSCLI’s Mom’s Night Out
Ciro’s Restaurant in Hauppauge
470 Wheeler Road/Route 111
Tuesday, May 15th, 2012 at 8:00 PM
Pasta Night Tuesdays include soup/salad, pasta entree, dessert, and coffee for $12.95 + tax and tip. Drinks Not Included.
Please RSVP by May 9th. Click here to RSVP
……………………
Long Island Children’s Museum – ‘A Special Evening for Special Families’
by K.I.D.S. Plus/Northport-East Northport SEPTA
Saturday, May 12th, 6-9pm
Admission $5 per family
11 Davis Avenue Garden City, NY 11530The museum will be closed to the public for 3 hours and open for our families only. A special sensory play area will be open.
Click LICM 2012 for flyer
……………………….
DDI’s Spring Festival
Sponsored by Starting Early
May 5, 2012 (raindate: May 6th)
25 Little Plains Rd, Huntington, 10 am to 2 pm
Please come out and help them raise money to renovate their school!
If you have any questions, please contact Rose Kennedy at 266-4415 or
……………………
Friars Golden Kids Carnival
Saturday, April 28th at St. Anthony’s High School from 10:00 AM to 2:00 PM Carnival for children with special needs and their family members will include inflatable rides, carnival games, a DJ, lunch, and other activities. Free to attend, although a free will offering is greatly appreciated
……………………
DDI’s Spring Festival
Lecture at Cold Spring Harbor Laboratory with Dr. Brian Skotko, MD, MPP
Keeping Children and Adolescents with Down Syndrome Healthy:
Medical Updates for Physicians, Parents, and Educators
Date: Monday, April 16th, 2012 at 7:00 PM
Board-certified medical geneticist at Children’s Hospital Boston, Massachusetts General Hospital, Brigham & Women’s Hospital, and Dana Farber Cancer InstituteInstructor, Children’s Hospital Boston, Harvard Medical School, Boston, MA | Click here for flyer
…………………….
Conference “Building the Future” at the UN
Date: Wednesday, March 21, 2012 – 10:00 AM-2:30 PM
You must register prior to the conference (only those with names on the list will be allowed to enter the building).
Registration is free. To register, send an e-mail to [email protected] and include the following information: Name, e-mail, age, nationality, relation to Down Syndrome, Document # of passport, driver’s license, or student ID, your DOB, address.
For more information on the event, click here
……………………
Great Tasting Night at Friendly’s on Monday, March 19, 2012 from 5:00 – 8:00 PM hosted by Alexander’s Angels
Have dinner at any Long Island Friendly’s or Avon, CT and Friendly’s will donate a percentage of all sales taking place during the event, including take-outs to Down Syndrome Research FLYER MUST BE PRESENT – Go to www.alexandersangels.org for the flyer.
……………………
The 9th Annual Conference on Best Practices in the Education of Children with Down Syndrome
Sponsored by: The Down Syndrome Advocacy Foundation and The Center for Community Inclusion March 9-10, 2012 Long Island University Post Campus Click here for the brochure
……………………
DSCLI Family Bowling & Pizza
Sunday, February 12, 2012 from 4-6 PM AMF Syosset Lanes located at 111 Eileen Way, Syosset, NY 11791 (516) 921-7575 $16 pp includes unlimited bowling, shoe rental, pizza, and soda Please RSVP at [email protected], or at DSCLI on Facebook, or call 631-678-6810. Space is limited. Please respond by February 7th. Go to www.amf.com/syossetlanes for directions.
……………………
New Parents Meeting and Chiropractor Guest Speakers
Tuesday, January 17, 2012 Good Samaritan Pediatric Specialty Care located at 655 Deer Park Avenue in Babylon (631)321-2100 – Please note this location is NOT the hospital. 6:30 – New Parent Meeting 7:30 – DRS. Jamie Forster and Karissa Maggio from Forster Health Care (www.forsterhealthcare.com/home.htm) Learn how diet plays a critical role in your child’s health and what they should and shouldn’t be eating to promote better health. This can help the child’s sleep cycles, decrease congestion, improve digestion/elimination, brain functioning/learning skills, and skin conditions. Learn how to maintain your child’s good health with less need for prescription medication. Refreshments will be served RSVP at Please contact Shana at 631-678-6810 for questions.
……………………
DSCLI’s Annual Holiday Lunch
Sunday, December 11, 2011 12-3 Knights of Columbus, 9 Hewitt Square # A, East Northport, NY 11731 (631) 262-1891 Please join us for our annual holiday lunch. There will be lunch, dessert, DJ, and crafts. Due to limited seating, please limit your party to immediate family. $25 per family. Please contact Virginia at (631) 261-8332 if you have any questions.
……………………
Financial Planning Workshop – Monday, November 14, 2011 at 7 PM
We invite all parents and caregivers of Children with Down Syndrome to attend an informative evening at Good Samaritan Hospital’s Center for Pediatric Specialty Care 655 Deer Park Avenue, Babylon, NY (631)321-2100. Guest speakers Marie Cantone and John Panaro with The Center for Wealth Preservation Please RSVP to Mary at (631)424-1071 For more information, click here
……………………
Romp For Research
To Benefit DSRTF (Down Syndrome Research and Treatment Foundation) October 2, 2011 at 2:30 on the Asphalt Green in NYC. For more information, please go to www.dsrtf.org.
……………………
5th Long Island Buddy Walk
Saturday, October 1st, 2011 Eisenhower Park, East Meadow, NY 10:30 A.M. – 3:00 P.M. For more information, please visit www.alexandersangels.org
……………………
DSAF 1st Annual Golf Outing
Thursday, September 29,2011 Pine Ridge Golf Course, County Road 83, Coram, NY For more information, go to www.dsafonline.org
……………………
DSCLI’S Annual Family Fun Day
Sunday, September 25, 2011 12:00 to 5:00 at Hoyt Farm in Commack 2 Playgrounds, animals, grassy field, softball field, nature trails, nature center, BBQ pits, and picnic tables under a covered pavilion. Fun activities provided for the children. Bring your own food. No alcoholic beverages permitted. Please feel free to bring a dessert to share with the group at the dessert table. $5.00 parking fee for non-smithtown residents. Please RSVP at . Go to www.smithtowninfo.com/Hoytfarm for directions.
……………………
Mom’s Night Out
Thursday, August 18, 2011
7:30 PM at Chocolate With A Twist, 528 Larkfield Rd. E. Northport, NY, 11731 $20 pp which includes chocolate mold with supplies to decorate, box, glass of champagne and chocolate fountain with snacks
……………………
4th Annual Family Fun Day
Saturday, June 11th 2:30 pm – 6:30 pm Crab Meadow Beach off Waterside Avenue, Northport For more info download our flyer: 4th Annual Family Fun Day (PDF)
New Parents Meeting (PDF)
Monday, June 27, 2011 7:00 PM At Good Samaritan’s Center For Pediatric Specialty Care 655 Deer Park Avenue Babylon, NY (631) 321-2100 This is a wonderful opportunity to meet other new and expectant parents of children with Down syndrome. Learn about local resources and events that are available right here on Long Island